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ABSTRACT
Advent of the
Internet as a medium of mass communication poses numerous opportunities,
challenges and dilemmas for mental health professionals; especially those in
the developing countries. The Net is a cost-effective alternative and
supplement for the conventional methods of education and research.
Online-publishing offers a solution to the low visibility of research from
developing countries. Mental health professionals have to be aware of the
advantages and disadvantages of methods of online patient care, like
physician-patient e-mail, telepsychiatry, educative websites, and online
psychotherapy. Internet revolution has introduced Internet addiction
disorder, Munchausen syndrome through Internet, Internet pedophilia and
Internet delusions; and the Net is being misused to promote drugs.
Developing countries should address the issues of poor penetration rate and
dearth of websites in non-English languages.
INTRODUCTION
The Internet has
been described as the most important development in global communication
since both the television and the telephone (Al-Shahi et al., 2002). An
estimated 12.7 % of the world’s population currently uses Internet, with a
user growth of 125.2 % in the last four years (Internet World Stats, 2004a).
Health is probably the largest single category of information hosted by the
Internet, and over two thirds of the online public seeks information about
it (Harris Interactive, 2002). Articles that discuss how the Net is changing
the day-to-day practice of Psychiatry have already appeared in major
psychiatric journals (For e.g., Huang and Alessi, 1996; Al-Shahi et al.,
2002, Styra, 2004). This article outlines the implications of the increasing
popularity of the Net for mental health professionals, especially those in
the developing countries. The opportunities for education, research and
patient-care offered by the Net; the impact the Net has on the mental health
of its users; and some limitations in the current scenario are discussed.
ONLINE EDUCATION
Healthcare workers
in the developing world have for years had the problem of very limited
access to the latest information that is the lifeblood of effective health
care (Godlee et al., 2000). Whereas the professionals in the developed world
have information overload, the developing countries have bare library
shelves; and the Internet provides an opportunity to narrow this gap
(Kennard, 2001). Various open-access and free access journals, online
guidelines and articles, and official and personal websites provide the
medical professionals across the globe with an unprecedented access to
invaluable information. Under the auspices of the World Health Organization,
leading medical publishers have agreed to provide free access to electronic
versions of journals to people working in developing countries (Kmietowicz,
2001).
Online Publishing and
Developing Countries
Concerns have been
raised about the low visibility of research from developing countries. While
Zielinski (1995) found that 98% of journals indexed by Western services such
as Medline are from the developed world, Patel and Sumathipala (2001)
reported that 94% of the articles published in six leading psychiatric
journals over a three year period were from Euro-American countries. The
psychiatric problems of the world’s poor, and research aimed at the
resolution of those problems, do not feature significantly in the
psychiatric journals with the highest impact factors.
The advent of
Internet has made it possible for authors, institutions and professional
organizations in developing countries to bypass traditional avenues of
scientific publishing, and to post their research directly on their own
websites. Online journals are easier to publish; the tempo of publishing is
accelerated; the articles may contain colored graphs, photographs, X-ray
pictures, PET scans, or even video sequences, without any additional costs;
hyperlinks to the cited references make it easy to access the original
literature; and the authors could be directly contacted by means of the
E-mail address provided in the article (Bandelow, 2000; Obst, 2003; Styra,
2004). On-line versions of articles are found to be accessed more often than
their print versions (Obst, 2003), and some psychiatric journals like German
Journal of Psychiatry <http://www.gjpsy.uni-goettingen.de/> appear only
online, without any printed version.
The Indian Medlars
Centre of National Informatics Centre, New Delhi, has designed two
databases, IndMED, a bibliographic database of peer reviewed Indian
biomedical journals and medIND, full-text of select IndMED journals. These
are accessible free of cost from the Center’s site <http://indmed.nic.in/>.
An increase in visibility and International submissions has been noticed for
online Indian journals like Journal of Postgraduate Medicine <www.jpgmonline.com>
(Scaria, 2004). Unfortunately, most of the Indian journals on mental health
are still not online. There is an urgent need of the journals published by
professional organizations and institutions to go online and increase their
visibility. Assistance of agencies like Bioline, a not-for-profit electronic
publishing service for providing open access to journals from developing
countries <http://www.bioline.org.br/>; JournalServer.org <http://www.journalserver.org/>,
an online library of academic journals; or aippg, <http://www.aippg.com/free-hosting/>,
a site that offers free hosting for medical websites, may be sought to
achieve this goal.
Open Access
Open Access by
definition means “immediate, permanent, toll-free, non-gerrymandered, online
access to full text” (The Budapest Open Access Initiative Definition). Open
Access may be considered as borne on three pillars- Open Access Archiving,
Open Access Publishing, and Open Access Support/Advocacy.
Open Access
archiving: Open Access archiving, or the deposition of scholarly research
papers into networked servers accessible over the Internet, is one
development that has great potential value for poorly resourced countries.
Since 1991, high energy physics researchers around the world have networked
through an eprint archive - 'Arxiv' - <http://arxive.org/>.
Arxiv receives two-third of its two million weekly hits from institutions
outside the United States, including many research facilities in developing
regions. The success of Arxiv led to the creation of the Open Archives
Initiative which has developed E-Print <www.eprints.org>
software which would enable interoperability between different archives
encompassing different specialties. These data are available through search
engines like OAIster <http://oaister.umdl.umich.edu/o/oaister>.
The new wave has swept through the biomedical domain too, with a number of
institutional and centralized archives like Cogprints <http://cogprints.soton.ac.uk/>
being established (Scaria, 2004).
Open Access
Journals: Journals are increasingly finding it a viable option to go Open
Access given the fact that many Open Access Journals have rapidly built upon
readership base, visibility and impact. A recent analysis revealed that the
impact factors of nearly 200
open-access journals are similar to those of traditional journals in the
same fields, and that they are doing better in some categories. For e.g.,
the
Journal of Psychiatry and Neuroscience <http://www.cma.ca/jpn/index.htm>
was ranked in the 70th percentile in the medicine category (McCook,
2004).
News on the Open
Access movement could be viewed at the blog “Open Access News” <http://www.earlham.edu/~peters/fos/fosblog.html>.
Difficulties, Limitations and
Precautions
Psychiatrists’ use
of online resources are affected by factors like awareness of the existence
of on-line programs, interest and motivation to use new technology, quality
and currency of the content, an educational format that is not only easy to
use but also intellectually engaging, cost, registration requirements, etc.
(Styra, 2004). Casebeer et al., (2002) found that the most common reason
physicians sought information on the Internet was to solve a specific
patient problem, and the major barriers they faced in the process were “too
much information to scan” and “too little specific information to respond to
a defined question”. Lack of regulation and commercial exploitation has led
to an excess of poor quality health information in the Net, and studies have
revealed poor quality of websites on depression (Griffiths and Christensen,
2002) and eating disorders (Murphy et al., 2004).
The poorest
countries are unable to sustain the essential ICT infrastructure even at
their major hospitals; and there is a continuing remoteness of health
professionals working in remote district hospitals and clinics from
electronic information sources which would be appropriate to their limited
resources (Patrikios, 2000).
Psychiatrists should
be aware that an extensive array of guidelines are available online and that
patients or their families may challenge them to explain discrepancies
between their treatment and evidence-based guidelines found on the Internet
(Styra, 2004). Bandelow (2000) reminds authors publishing medical articles
on the Internet that their articles could be read also by patients and their
relatives, but also adds that this is not necessarily a disadvantage in all
cases.
DOING RESEARCH ONLINE
The possibility of
conducting clinical trials entirely online is an enticing medical
application of the Internet. The penetrance of the Internet in the
population offers the possibility of rapid recruitment of participants, and
technological advances enable instant collection of data in a secure and
confidential manner (Carey, 1997). Computer-assisted assessment is cheaper
and more efficient than clinical interviews or paper-and-pencil
questionnaire (Budman, 2000). Nicholson et al. (1998) criticize that
Internet research is likely to impose a bias toward male, better educated,
and more computer-involved samples on the respondents reached. Brosius
(2001) lists the following advantages and disadvantages of Internet
research:
Advantages:
-
Inexpensive (low distribution
cost)
-
Fast (return of results within
days)
-
No personnel needed
-
Multimedia presentation possible
-
Large samples possible
-
Automated data entry
Disadvantages:
-
Sampling problems (What is the
population?)
-
Low response rate; self-selection
by respondents
-
Technical problems (eg, browser
differences, resolution, etc)
-
Brevity of questionnaire
-
Unclear response
-
Multiple participation
INTERNET AND PSYCHOPATHOLOGY
Depression
Morgan and Cotten
(2003), in an Internet survey of college freshmen at a mid-Atlantic
mid-sized university, detected that an increased e-mail and chat
room/instant messaging (IM) hours are associated with decreased depressive
symptoms, while increased Internet hours for shopping, playing games, or
research is associated with increased depressive symptoms. However, young
Internet users with depressive symptomatology are more likely to be the
targets of Internet harassment and unwanted Internet sexual solicitation
(Ybarra, 2004; Ybarra et al., 2004).
Munchausen Syndrome through
Internet
Feldman (2000)
coined the term "Munchausen by Internet” to refer to people whose factitious
disorder manifest online. These patients click from one patient support
group to another, can join multiple groups simultaneously under the guise of
illness, can use different names and accounts, and can even sign on to one
group with multiple identities. Feldman (2000) suggests the following clues
to the detection of factitious Internet claims.
1. The posts consistently duplicate
material in other posts, in books, or on health-related websites
2. The characteristics of the supposed illness emerge as caricatures
3. Near-fatal bouts of illness alternate with miraculous recoveries
4. Claims are fantastic, contradicted by subsequent posts, or flatly
disproved
5. There are continual dramatic events in the person's life, especially when
other group members have become the focus of attention
6. There is feigned blitheness about crises (e.g., going into septic shock)
that will predictably attract immediate attention
7. Others apparently posting on behalf of the individual (e.g., family
members, friends) have identical patterns of writing.
When Munchausen by
Internet seems likely, it is best to have a small number of established
members gently, empathically, and privately question the author of the
dubious posts. Even though the typical response is vehement denial
regardless of the strength of the evidence, the author typically will
eventually disappear from the group. Remaining members may need to enlist
help in processing their feelings, ending any bickering or blaming, and
refocusing the group on its original laudable goal.
Internet Addiction Disorder
The concept of
Internet addiction entered the medical dictionary in 1995. According to the
model proposed by Grohol (1999), most people with Internet addiction are
likely newcomers to the Internet, going through a stage of acclimating
themselves to a new environment – as this environment is larger than
anything they have seen before, some people get "stuck" in the acclimation
stage for a longer period than is typical for acclimating to new
technologies, products, or services. Types of Internet addiction include "cybersex",
chat rooms, and net gaming"; the pathological search for information or
video games being the most frequent (Dejoie, 2001). Shapira et al. (2000)
studied persons with problematic internet use (n = 20). All the subjects
were found to meet DSM-IV criteria for an impulse control disorder not
otherwise specified, and to have at least one additional lifetime DSM-IV
Axis I diagnosis, with 70.0% having a lifetime diagnosis of bipolar
disorder.
Internet Delusions
Delusions,
especially in patients with schizophrenia, often reflect the sociocultural
characteristics of the epoch, and delusions regarding the Internet have
started appearing (Tan et al., 1997; Catalano et al., 1999; Kobayashi,
2001). The Internet has many characteristics that are compatible with such
abnormal schizophrenic experiences as thought-broadcasting and worldwide
delusional systems, and thus seems to be incorporated easily into the
delusional systems of schizophrenia patients (Kobayashi, 2001).
Net and Substance Use
Hesselink (1998)
reviews the problems posed by 'smart drugs', a new class of drugs for
healthy individuals heavily promoted via the Internet. Drugs advertised via
the Net include selegiline and androstenedione as aphrodisiacs, phenytoin to
improve memory and intelligence, gamma-hydroxybutyrate to increase sexual
desire, etc. Though their efficacy in healthy individuals is not proven and
the proof offered on the Net is of a simple structure and not peer reviewed,
the drugs are promoted as 'natural', having a low toxicity and a broad
therapeutic window. The problems of side effects, abuse and dependency are
rarely discussed. All of these drugs are freely and easily accessible via
global mail order companies that ship these drugs to customers all over the
world after having obtained an order via the Net. Psychiatrists and family
practitioners should be aware of this source of drugs, since many of these
drugs have a narrow therapeutic margin and can interact negatively with
other psychotherapeutic agents. Psychiatrists need to understand that
especially younger patients might make use of these drugs, in varying doses
and often in combinations with psychiatric medications.
Internet Pedophilia
Deirmenjian (2002)
reports cases of pedophiles who used the Net to exploit child victims, and
explores the role that mental health professionals may play in the
assessment of Internet pedophilia. Mental health professionals may provide
psychiatric treatment to victims of Internet pedophiles, may be involved in
the evaluation of perpetrators of Internet crimes in a clinical or forensic
setting, or Governmental agencies, the criminal justice system, school, or
the media may request consultations by mental health professionals as part
of a multi-disciplinary approach to prevention. The author discusses two
models of pedophilia on the Internet: a trust-based seductive model and a
direct sexual model.
ROLE OF INTERNET IN THE
MANAGEMENT OF PSYCHIATRIC DISORDERS
Internet and modern
technologies provide a reliable, alternative solution in the provision of
medical advice, adjuvant to the conventional medical services. Websites can
provide information to patients and their relatives; and health-related
online communities can provide social support (Pleace et al., 2000), reduce
isolation (White et al., 1999), and can help people cope more effectively
with their disease (Klemm et al., 2003). Due to stigma or the interpersonal
communication problems associated with the psychiatric disorders, many
patients and their relatives may use the Internet as a first step for
obtaining information or even to initiate contact with a physician. A set of
principles of professional ethics for the online provision of clinical
mental health services have been produced by a joint committee of the
International Society for Mental Health Online and the Psychiatric Society
for Informatics (Hsiung, 2001).
Educative Websites
As of November 2004,
the Open Directory Project <www.dmoz.org> lists 6,506 websites in its
“Mental health” category, of which 3,866 sites are in the “Disorders”
subcategory. Although mental health websites are regarded as a useful
adjunct to therapy, concerns had been raised about the use of such sites as
a "Band-Aid," which may delay or prevent consumers from obtaining
much-needed mental health care (Christensen and Griffiths, 2002; Budman,
2000).
Labiris et al.
(2003) report that 40.9% of the psychiatric patients who visited their
medical site seeking medical advice expressed their satisfaction, while
48.5% of stated that the service was essential in understanding their
problem. Azocar et al. (2003) found that providing members of a managed
behavioral health organization with free Web site access did not appear to
promote or delay their use of mental health services. Christensen et al.
(2002) evaluated the efficacy of a psychoeducation website offering
information about depression and an interactive website offering cognitive
behaviour therapy for community-dwelling individuals with depressive
symptoms. Both the interventions were found to be more effective than a
credible control intervention in reducing depressive symptoms. The Web-Based
Depression and Anxiety Test, a web-based self-report screener, have been
found reliable for identifying patients with depression and various anxiety
disorders (Farvolden et al., 2003). Copeland and Martin (2004) reviewed a
number of computerized and Internet-based interventions for substance use
disorders, and found most of them to be largely descriptive, with no large
randomized controlled trials of Internet-delivered interventions for
substance use disorders reported.
Internet Communities
The Internet
communities consist of individuals seeking assistance with problems such as
depression, suicidal tendencies, substance abuse, cancer, and eating
disorders (Finfgeld, 2000). These communities provide users with information
and a platform for peer-to-peer communication that may be synchronous (e.g.
chatrooms) or asynchronous (e.g. messageboards). Caregivers of Alzheimer
disorder patients (White and Dorman, 2000), teenage smokers (Woodruff et
al., 2001) and problem drinkers (Pleace et al., 2000) have been shown to use
online support groups. Many users find it easier to discuss mental health
topics online rather than in person, and have reported benefits in terms of
information, social support and contact (Agrell and Walinder, 2002; Houston
et al., 2002; Kummervold et al., 2002]. Most of the users perceive
discussion groups as a supplement rather than a replacement of traditional
mental health services, and want professionals to take an active role in
these types of forums (Kummervold et al., 2002).
The possible
limitations of Internet communities include abuse by users offering false
stories (Feldman, 2000); concerns over the dissemination of inaccurate
information (Desai et al., 1997); exclusion of certain groups through the
'digital divide'; and the misinterpretation of online messages lacking in
visual or aural cues (White and Dorman, 2001). Humphreys et al. (2000)
provide an appraisal of psychologists' ethical responsibilities in online
discussion, support, and self-help groups and offers practical strategies
for avoiding ethical problems.
Telepsychiatry
American Psychiatric
Association defines telepsychiatry as “the use of electronic communication
and information technologies to provide or support clinical psychiatric care
at a distance” (American Psychiatric Association, 1998). APA discusses a
number of applications of telepsychiatry, including clinical interviews,
emergency evaluations, case management, and supervision of procedures such
as electroconvulsive treatment, and clinical supervision of remote trainees.
The disadvantages of telepsychiatry include compromised relationship between
health professionals and the patients, the need for major organizational
changes, equipment costs, and the need for training of staff and maintenance
of the equipment (McLaren, 2003). With a shortage of trained mental health
professionals to attend to a rural population nearing 700 million, India is
expected to benefit enormously from use of telepsychiatry. The e-mail
helpline of Central Institute of Psychiatry, Ranchi <cipranchi@hotmail.com>
is being extensively used by patients and their relatives across India.
Physician – Patient E-Mail
E-mail has the
potential to enhance the professional relationship between physician and
patient. Baker et al. (2003) found that 6% of US households over age 21 use
e-mail to contact a physician or other health care professional. The
advantages of E-mail are that it is faster than all other forms of mail
services; it can be exchanged across time zones; it is not dependent on the
presence or absence of both the sender and the receiver at the two ends at
the same time; and that it is less expensive than other means of
communication like fax or telephone (Kapur, 2001). However, most e-mail
programs/services are not secure, thus subjecting the patients to possible
breach of confidentiality (Luo, 2002).
Guidelines developed
by American Medical Association emphasize that e-mail should not be used to
establish a patient-physician relationship, but rather to supplement
personal encounters. When using e-mail, physicians hold the same ethical
responsibilities to their patients as they do during other encounters and
that information must be presented in a manner that meets professional
standards. The guidelines require that physicians notify patients of
e-mail's inherent limitations and that patients be given the opportunity to
accept these limitations prior to the communication of privileged
information (Bovi et al., 2003). The Canadian Medical Protective Association
recommends that physicians discuss the ramifications of communicating
electronically with patients and obtain documented informed consent before
using e-mail (Styra, 2004).
Online Psychotherapy
E-therapy is a term
that has been coined to describe the process of interacting with a therapist
online in ongoing conversations over time when the client and counselor are
in separate or remote locations and utilize electronic means to communicate
with each other (Manhal-Baugus, 2001). Convenience is a major advantage of
e-therapy, and for patients with limited mobility or suffering from anxiety
disorders such as social phobia e-therapy abolishes the barrier to treatment
(Luo, 2002). The American Counseling Association (1999), the American Mental
Health Counselors Association (2000), and the International Society for
Mental Health Online (2000) have all issued specific guidelines for online
counseling. These guidelines require practitioners to give patients an
alternative way to initiate contact in the event of technology failure and
require the therapist to ascertain patient identity and to establish
alternative ways to reach the patient or send help. An Internet-based
cognitive behavior therapy intervention was found to reduce anxiety and
depressive symptoms by (Christensen et al., 2002). When surveyed, online
patients seemed happy with the treatment they receive (Ainsworth, 2002)
Concerns have been
raised about the nonavailability of social and nonverbal cues that may
facilitate the communication's context (Luo, 2002). Alleman (2003) suggests
that capitalization, type size, word repetition, spacing, fonts and
emoticons can become supplemental tools to compensate for the loss of visual
and auditory cues. Stofle (2001) advises against exclusive online treatment
for those who exhibit psychotic, borderline or suicidal symptoms.
Preventive Interventions
Christensen and
Griffiths (2002) lists various features of the Internet that make it
suitable for public health interventions, including its potential to reach a
mass audience; cost-effectiveness of the Internet-based interventions;
anonymity; and the net’s capability of supporting individually tailored
prevention programs and automated applications that guarantee intervention
fidelity. The authors also note the following limitations to public health
interventions using the Internet:
-
Lack of access to
the Internet: Higher-income families, families with children and people
living in cities rather than rural areas are more likely to have computer
and Internet access (Rosen, 2000). Internet use is much less frequent
among people older than 55 years. Although access may generally be lower
in these groups, Internet consultation may bring significant benefits to
"groups that are arguably disadvantaged in traditional medical health
care" (Brebner et al., 2001).
-
Individuals might
not use prevention programs on the Internet: Potential users may be
unaware of a website intervention, lack the motivation to access the site,
or readily exit to one of the many competing sites on the Web.
THE “DIGITAL DIVIDE” AND
OTHER BARRIERS
In 2004, while the
68.3 % of North America’s population uses Internet, the corresponding rate
for Africa is 1.4 % (Internet World Stats, 2004a). Even in the developed
countries, old and poor people have poor internet access (Wong, 2004).
Notwithstanding the remarkable progress in the application of information
and communication technologies in India, many of our villages still lack a
working telephone (United Nations Development Programme, 2000). As on
December 2003, only 1.7% of India’s population has been using the Net
(Internet World Stats, 2004b). The Government of India has announced an Rs
12,410-crore technology project to bridge the divide and to develop a
voice-activated, low-cost computer for the country's illiterate rural
populace (Newindpress, 2003). Akshaya <http://www.akshaya.net/>, an
e-literacy programme started by Government of Kerala with the aim of making Kerala
the first completely e-literate state in India by 2005, is another laudable
initiative.
The presence of
Indian languages on the Web is very limited and still in its nascent stages.
Uses of Indian languages have to overcome the technological barriers, since
technology is primarily available in English and focused on the use of
English. Displaying Indian scripts on available browsers and management of
multilingual content is a difficult task. Moreover, browsing a new Indian
Language site requires downloading of fonts and configuration of the
browser. Khatri (2002) have mentioned the technical aspects on creating web
pages in Indian regional languages. Anna University has recently developed 'Kazhugu',
a search engine capable of searching all the Tamil websites, and this is
thought to be the first search engine in an Indian regional language. Very
few sites are offering e-mail in Hindi or local languages. E-mail in Hindi
is available in sites like <www.ebharati.biz>, <www.langoo.com>
and <www.inoman.net>, while sites like <www.e-patra.com> and <www.rediff.com>
offer e-mail in some regional languages also.
CONCLUSIONS
The advent of
Internet as a medium of mass communication poses numerous opportunities,
challenges and dilemmas for mental health professionals. It is necessary for
all mental health professionals, especially those in the developing
countries, to remain informed on the latest developments in this area, so
that they are able to derive maximum benefit from the opportunities offered
by this exciting medium.
COMPETING INTERESTS
The author owns and
edits PsyPlexus <www.psyplexus.com>, a portal for mental health
professionals.
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